Caregiving: Tips for long-distance caregivers
Long-distance caregiving poses unique challenges. Find out what you can do to help your loved one from afar — and how to make the most of personal visits.
If you live an hour or more away from a loved one who needs care, you might wonder what you can do to help. Start by understanding options for long-distance caregiving, ranging from coordinating services to providing respite for a primary caregiver.
How can I keep on top of my loved one’s care from long distance?
You can take many steps to be an effective long-distance caregiver. For example:
You may also be able to log into your loved one’s medical records online to see test results, medications, after-visit summaries and more. Medical office staff members can tell you if they offer electronic medical records and how to request permission.
Bear in mind that your loved one will make final health care decisions unless he or she has named a medical power of attorney. This is a type of advance directive — written, legal instructions regarding preferences for medical care. A medical power of attorney (health care proxy) makes health care decisions when a patient cannot.
How can I make the most of visits with my loved one?
Careful planning can help you effectively use your time with your loved one. For example:
- Find out what your loved one needs. Before visiting your loved one, talk to him or her about what tasks you might be able to assist with during your trip. Does your loved one need to go shopping, or is there something at the house that needs to be fixed?
- Schedule appointments. Ask your loved one if you can accompany him or her on a doctor’s appointment during your visit. This will give you an opportunity to discuss your loved one’s health, medications and any other questions you might have. Take notes on the doctor’s recommendations. Ask the doctor to suggest any helpful community resources. Consider making appointments with your loved one’s lawyer and financial adviser, too.
- Look for signs of problems. During your visit, check to see how well your loved one is managing daily tasks. Is your loved one able to drive safely, eat regular meals, keep up with personal grooming, and pay his or her bills? Is your loved one taking medications as prescribed? Ask your loved one’s friends and neighbors if they’ve noticed any behavioral changes, health problems or safety issues.
- Set aside quality time. Ask your loved one about simple activities that he or she enjoys most, and do those things together. You might watch a movie, play cards, or take your loved one to visit friends or family — find out what your loved one wants to do, and do that.
I feel guilty that I’m not there enough for my loved one. What can I do?
Many long-distance caregivers feel guilty about not being able to do enough or spend adequate time with a family member in need of care. If you’re feeling guilty, remind yourself that you’re doing the best you can. It might be helpful to join a support group for caregivers. You might benefit from the tips of others as well as the knowledge that you’re not alone.Aug. 17, 2016
- A guide to taking care of yourself. Family Caregiver Alliance. https://www.caregiver.org/print/151. Accessed July 26, 2016.
- Working successfully with home care services. Family Caregiver Alliance. https://www.caregiver.org/caregiver-working-successfully-home-care-services. Accessed July 26, 2016.
- Tips for the long-distance caregiver. AARP. http://www.aarp.org/relationships/caregiving-resource-center/info-09-2010/pc_tips_for_long_distance_caregiver.html. Accessed July 26, 2016.
- Long-distance caregiving: Questions and answers. National Institute on Aging. https://www.nia.nih.gov/health/publication/long-distance-caregiving/introduction. Accessed July 26, 2016.
- Long-distance caregiving. Alzheimer’s Association. https://www.alz.org/care/alzheimers-dementia-long-distance-caregiving.asp. Accessed July 26, 2016.
- Takahashi PY (expert opinion). Mayo Clinic, Rochester, Minn. Aug. 1, 2016.
- A patient’s guide to the HIPAA privacy rule. U.S. Department of Health and Human Services. http://www.nextstepincare.org/uploads/File/consumer_HIPAA.pdf. Accessed July 26, 2016.
- 4 tips for long-distance caregivers. AARP. http://blog.aarp.org/2016/01/21/amy-goyer-technology-helps-long-distance-caregivers/. Accessed July 26, 2016.
- Advance care planning: Ensuring your wishes are known and honored if you are unable to speak for yourself. http://www.cdc.gov/aging/pdf/advanced-care-planning-critical-issue-brief.pdf. Centers for Disease Control and Prevention. Accessed Aug. 2, 2016.